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Post by Dave on Feb 5, 2013 16:12:41 GMT -5
Hi people, you can introduce yourselves here in this thread. I'm Chewie, Astrids other half, or should I say she's my better half.  I'm here in order to be of technical assistance as she sets the board up, and am happy to help any members, if I can, with anyb tech issues that may arise. That in regards to either forum or equipment. |
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Post by Astrid40 on Feb 5, 2013 16:22:08 GMT -5
Thank you Chewie! You're help is most welcome.xoxo
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pat
New Member
Posts: 12
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Post by pat on Feb 5, 2013 18:06:12 GMT -5
Hi Astrid and Chewie! This place looks good. Hope all is well with you. The grandson finally fell asleep so I'm going to rest for a while. Love and hugs to you both!
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Post by tracyalterio on Feb 5, 2013 21:02:59 GMT -5
Hi Chewie and Astrid! SO EXCITED to be here and thank you kindly for setting the site up! Its nice to have a place to go and chat!  Hope to chat with everyone soon! Big HUGS! Tracy xxoo |
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Post by jujubeee714 on Feb 5, 2013 21:54:32 GMT -5
Thanks for the kool group Chewie and Astrid! Funny your name is "Chewie"...I'm not sure why it is..(Star Wars fan maybe?) My daughter is getting married to a big Star Wars fan in May and they are having/letting people come dressed up in Star Wars costumes and it is the "theme". I laughed that my husband that recently grew a beard and mustache should let it all go and come as "Chewy". LOL Our daughter would be humiliated! haha... I'm glad to be here..was dxéd with (SLE) lupus in 2010..been on the adventure ever since. Along with my husband..much like you two..my husband John does all our tech issues (I work from home and we have a very computer video minded family and 12 yr old son to keep up with as well... Nice to meet you all! I live in Phoenix, AZ, it's our most wonderful time of year right now; perfect weather. About me: My lupus likes to attack my blood (anemia and circuling immune complexes) nerves (multiple cranial neuropathies and nerve entrapment syndromes) skin (currently have subacute cutaneous rash on back of neck and just dx'd with something weird and autoimmune called Cicatricial Pemphigoid- mucous membrane blisters in mouth and nose and some kind of pemphigoid/discoid mutant rash...lol, I'm not kidding...I want them to name it after me, how does the Juju-rash sound? I'm a graphic designer by trade, and I make lupus music videos..about lupus support and symptoms in my spare time. I keep a blog here at (and my life an open book and my contact info easy to find for anyone who is looking for help to connect to other people with lupus and whatever I can do to help out) Here is my blog: jujuslupus.blogspot.com/ pix of my newest rash up there and TIA experience from June, etc. Btw, I'm Julie, nice to meet you! Sorry I can YAP YAP YAP sometimes... 
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Post by Astrid40 on Feb 5, 2013 23:50:00 GMT -5
Hi Pat, Thank you for your lovely message. Great to have you on board. So pleased your grandson nodded off in the end, bless him Look forward to chatting with you more soon, lots of love and huge hugs Astridxoxoxo |
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Post by Astrid40 on Feb 5, 2013 23:55:30 GMT -5
Hi Tracy, Thank you for your lovely message Its good to have you on board as well. Look forward to chatting with you again soon, love and huge hugs Astridxoxoxox |
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Post by Astrid40 on Feb 5, 2013 23:56:08 GMT -5
Hi Tracy, Thank you for your lovely message Its good to have you on board as well. Look forward to chatting with you again soon, love and huge hugs Astridxoxoxox |
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Post by Astrid40 on Feb 6, 2013 0:04:11 GMT -5
Hi Julie, Thank you for your lovely message too. Its good to see you here too. Yes Chewie is from Star Wars, its a nickname Dave was given by friends, because of his hair i think. He has long hair, he is in a rock band. So it goes with the territory, hehelol. That should be a really interesting marriage with people dressed as star wars characters.
Sounds as though you have been having one hell of a rollercoaster ride with the Lupus. Having Lupus is certainly a challenge. Its great you can work from home when you are feeling up to it. You are one clever lady being able to do the graphic design work, i wouldnt have a clue. Thank you for sharing your blogspot, i am sure everyone will appreciate that. Its so good you are helping others with Lupus connect with each other as well. Its so important we have friends who understand what is happening and what we are going through to chat to. I think its good to talk, i think we all need to yap, yap, yap, hehelol. Thank you for sharing your life with us Julie, love and huge hugs Astridxoxoxoxoxo
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Post by chewie on Feb 6, 2013 13:15:28 GMT -5
With this in mind, there will soon be an area where members only will be able to see discussions. The private messaging system is standard here, and is set so that admins cannot read them.All HTML code works, for thos efamiliar with it, and the tags are above for quote, insert pioc, insert url etc.
feel free to play, need help, please ask, no trouble.
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Post by tracyalterio on Feb 26, 2013 21:51:01 GMT -5
Hi All-I am newly diagnosed with lupus/APLS since September, 2012, although I've known I've had it for awhile with all the crazy symptoms I've been experiencing over the past few years. I am the proud mom of four children, 22, 19, 17 and 12 and the wife of my supportive husband, Dennis. We will be married 24 years this May. Some of you already know me here, and I thank you for your continued support and friendship, but I am also looking forward to making new friends as well!! I am here to support my fellow lupies and would love your support as well! Since I am new to the official "lupus world," I am counting on you "seasoned" friends for all your expert advice! Much love, health and happiness to you all! Blessings & Peace Tracy xxoo  ;D     |
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Post by Astrid40 on Feb 27, 2013 18:51:13 GMT -5
Hi Tracy, Its so lovely to see you here. Bless you Tracy, it must of been a shock when you were diagnosed with Lupus and APLS, although you knew there was something wrong yourself, it was a fight i expect to get doctors to listen to what you were going through. Well you know my story, where the doctors previous to the doctor i have now, just wouldnt accept anything was wrong with me, they just kept saying all my symptoms were due to depression and Post Traumatic Stress Disorder. Although when i look at things now, i think they were just being lazy, or just didnt want to spend any of their budget looking into what was wrong. As i had infection after infection. Inflammation in my chest, where i had to take aspirin for six weeks, joint and muscle pain having to have steroid injections in my knees. Anything i did get was three times as worse as anyone else got it. I got chicken pox twice, when usually people only have that once. Thank god i moved and plucked up the courage to see someone else. My Rhematologist said if i hadnt of got diagnosed when i had, i wouldnt be here now. When i think of that, it feels unreal. But apparently my cell count was totally wrong, i was low on potassium, so low i was heading for a heart attack. And also so many other things had been missed. But hey ho, at least i have a good Rhuemy now, something i know you are struggling with my dear Tracy, as i said, if i could i would fly my Rheumy over to you, or the other way round. If only eh? I am praying every day, you get the Rhuemy you so deserve. Or the one you have turns around and becomes what he should be for you. How lovely that you have four children. I know it must of been such hard work for you. I am so pleased you have such a supportive husband, that makes all the difference. Wow 24 years this May, thats something! Early congratulations and well done to you and your hubby. Thank you so much for coming on here today, and look forward to chatting with you soon, lots of love and huge hugs, hang in therexoxoxoxox
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Hope to chat with everyone soon! Big HUGS! Tracy xxoo 
