Lupus and APLS

Hi Tracy, Thank you for replying, APLS affects me too. I used to be on Plaquenil but sadly it affected my eyes, and i ended up having pigmentation on the backs of my eyes. Its a very rare side effect. So my meds had to be changed over. About six months ago or maybe less, i had an opticians appointment, i was expecting the optician to say the pigmentation on the backs of my eyes had well and truely gone. But no, he said it was still there. Its been ten years since i had the side effect, and they said it would go with time. I am not sure how long it will take, but i was under the impression it would be if i stopped the meds, the pigmentation would go gradually. Anyway thank god i went to the opticians. I am now on methotrexate injections which are once a week, and i do them at home, it does make it easier than keep going up the hospital for just one injection. I too take aspirin. I hate the memory loss, and when i cant remember the words i want to use. Some are so simple words, it can be so frustrating, and embarrasing too. Its so awful you had miscarriages too, the same as i did. How awful you hemmorhaged too. I am so pleased you are here to tell the tale, albeit it such an awful thing to come through. You have been through so much, like so many people who have also got APLS along with Lupus. Its not pleasant having to do your own injections. I also had to do that too. I had to give myself heparin injections when i was pregnant for the last time. The idea was they would stop me clotting, and then i hopefully wouldnt lose the baby, sadly this also didnt work out., and yet again sadly having a child wasnt to be. Its a long story, but the upshot of it all was, the hospital got it all wrong, and i now have no chance of having children ever. Although now i am at that age, and so unwell at times, i dont think it would be wise for me to have a child right now. That was a long time ago now. I pray you dont get anymore clots too. Its so frightening for you. I dont know about you Tracy, but sometimes knowing we have everything wrong that we do have, can feel abit sureal, especially with all the meds we take etc. I have had a couple of mild strokes as well, and now my left side is weaker than my right. Its so frightening the thought it could be much more serious if it happens again. I do try and not think about it unless i have to. We have to be aware though. I totally can empathise with you there with having SLE, it is so exhausting, and the pain can be so wearing and not being able to do everything you would like to do can be so frustrating. It has taken me years to realise i have to pace myself. Before i would always be so excited if i felt i had some energy, then of course i would end up overdoing things, and end up paying for it and end up in bed for longer periods of time than i would of been if i had listened to my body more. So now i try and remember i need to rest in between doing things. I am looking forward to the Spring, not the hot weather, but Spring where its abit warmer, and hopefully by then everyone will be less infectious. You are such a brave lady, and you have such a lovely family too, hang in there Tracy, i am thinking of you, take care, rest well when you are able, look after yourself, speak soon my friend, love and huge hugsxoxoxoxo